Independent Living Movement Ireland (ILMI): Invitation to tender

ILMI is seeking to conduct research into the impact that forced reliance on family carers has / has had on the quality of life, and self-determination of disabled people. Nationally and internationally there exists an abundance of research which explores the impact of family caring on family members who provide care for disabled family members. However, there is a significant absence of research documenting the impact that reliance on family carers has on disabled people. The purpose of this research is to enable disabled people to share how the lack of independent living choices, resulting in a reliance on family carers, has impacted on their lives. ILMI intends to use the research findings to initiate a more holistic exploration of the impact of family caring and to highlight the importance of access to independent living for disabled people. 

Who is ILMI? 

Independent Living Movement Ireland (ILMI) aims is to support disabled people to achieve Independent Living, choice and control over our lives and full participation in society as equal citizens. 

As a national representative Disabled Person’s Organisation (DPO), ILMI promotes the philosophy of Independent Living and works to build a truly inclusive society. Development of evidence-based social policy is essential to achieving the key objectives in our Strategic Plan 2019 – 2022. Central to the way we work is ensuring that the policy decisions that impact on our lives must be directly influenced by those with the lived experience – ‘Nothing About Us Without Us’. 

Our Vision  

Our vision is an Ireland where disabled people have freedom, choice and control over all aspects of our lives and can fully participate in an inclusive society as equals. 

Mission  

We are working collectively to create an Independent Living Movement in Ireland led by disabled people, promoting a rights-based social model of disability, challenging the unacceptable a charity / medical view of disability. We are working towards the removal of societal barriers that prevent active equal participation of disabled people, challenging the denial of people’s rights and the promotion of the philosophy of Independent Living. 

Our core values are underpinned by the philosophy of Independent Living and all activities are aimed towards promoting: Independence, Options, Rights and Empowerment.  

Objectives of the Research 

The objectives of the research are:
  • Review and analyse national literature in relation to family members providing care and supports for disabled family members and specific references to the impact on disabled people’s lives. 
  • To create spaces for disabled people who rely on family members for care and assistance to have their voices heard.
  • To document the impact on disabled people themselves of having to rely on family members for assistance.
  • To ensure disabled people’s voices are central to any discussion about care or the impact of caring on family dynamics.

Tasks

The researcher will undertake the following tasks:
  1. Desk research: a literature review of research on the family care and specifically voices of disabled people in the family who rely on family supports. 
  2. Group discussions: Working with ILMI, create a series of Zoom workshops with disabled people who are or have had to rely on family to provide assistance and the impact on people’s lives.
  3. Individual interviews: following on from group discussions, work with individual disabled people to further explore the impact of having family members provide assistance both inside and outside of the home.
  4. Deliver a research report which will document the findings from the literature review, group discussions and one to one interviews. 

Timescale

The work should begin in December 2020 and be completed over a four-month period. It is anticipated that the work will be entirely completed by end of April 2021.

Outputs

The successful tender for the project will produce the following reports: 
  • Monthly updates to the ILMI CEO.
  • Initial literature review.
  • Research rationale for group and individual discussions.
  • Final report to ILMI.

Methodology 

The successful tender will carry out an initial discussion with ILMI (staff and board). From this a literature review will be carried out, followed by an outline of research questions to explore the issue with groups and individuals. The successful tenderer will 

facilitate a number of Zoom discussions with disabled people in both groups and one to one interviews. The findings of these interviews will be incorporated into the final report. 

Budget

It is estimated that the research will take no more than 10 days to complete, between literature review, interviews and report writing. 

Requirements 

Tenders should demonstrate:
  • Relevant research experience, an understanding or experience of issues affecting disabled people.
  • A proven commitment to human rights and equality.
  • Proven experience of working with disabled people (or other similar groups who have experienced social exclusion).
  • Experience of qualitative research, including facilitating group discussions and one to one interviews. 
  • Commitment to the values of the ILMI and the philosophy of Independent Living.
  • Evaluation and report writing experience. 
  • Experience that demonstrates ethical standards will be met throughout the research process, and ensuring that data protection and confidentiality provisions will be met.

Instructions for tenderer and tender process

In no more than 2,000 words, submissions should include the following:
  • Overall approach to the work and the tasks outlined
  • Proposed methodology for the work to be undertaken
  • Name and contact details of the tenderer / organisation and the personnel who would be involved in the delivery of the work
  • Previous experience of all personnel involved in undertaking the work (copies of previous work can be attached to tender if preferred)
  • Detailed costings for the work to be undertaken
  • Timeframe for the completion of the tasks of the research
  • Details of two referees

Tenderers should be submitted by email only to angelacoleman@ilmi.ie by Friday,  20 November at 5pm.